Little Stars- Children’s Palliative Care- Joseph’s Story
One of the great things about documentary film making is the amazing people you get to meet. We’ve had the great privilege of filming with Fiona and her son Joseph for Little Stars. We have just released Joseph’s Story as part of our Little Stars Indiegogo crowd funding campaign.
About Joseph’s Story by Fiona Stewart
“The most surprising thing I have learnt about paediatric palliative care is that it is not just about endings. Palliative care is really a steady arm to lean on: it supports you to make your time together the best it can be, and it helps families take some control back over their lives.
When our son Joseph was diagnosed with a severe epileptic condition when he was only three months old, we had little idea of what the future would hold for him. We did know that our little boy was struggling every day with a condition that did not promise a long and healthy life. Despite this, Joe continued to meet every day with a smile and a genuine and infectious joy at being alive.
Despite his frailties, he also demonstrated a strength and vigour at times that made something like paediatric palliative care seem alien to our daily lives; but caring for an ill child can be emotionally and physically exhausting and you come to realise that you need support. Paediatric palliative care services that provide sensitive and supportive respite care go a long way to keeping a tired family functioning.
David Suchet speaks out for Little Stars
“For children living with life-limiting illness, there is only now.”
LITTLE STARS INDIEGOGO CAMPAIGN – WE NEED YOU
ARTICLE COURTESY OF SUE BOUCHER @ E-HOSPICE
The makers of “Little Stars” the full length movie and short feature films on children’s palliative care have started a crowdfunding appeal to get them to the finish line in time for the film premiere at the World Cancer Congress in Melbourne this December.
Little Stars Russia
The Little Stars project stopped off in Moscow, Russia to capture more remarkably life-affirming stories of children and young people making the most of their lives despite happening to have life-limiting illnesses. Our heartfelt thanks goes out to our host, the Russian Children’s Palliative Care Association, who help over 100 families in the greater Moscow area.
We filmed with 2 year-old Anastassia, who has the rare hereditary condition of hyperinsulinism, and 19 year-old Nadya who is living with cerebral palsy and blindness. Both Anastassia, Nadya and their doting families are living proof a life-limiting illness need not limit a person’s life.
LITTLE STARS ITALY
We have spent an amazing week in Padova, Italy. Our hosts The Maruzza Foundation and Hospice Pediatrico Casa del Bambino were fantastic and enabled us to film with some incredible children and their families who are receiving support from the palliative care team at the hospice.
The work being done by the team at Casa del Bambino is exemplary. Currently it is the only paediatric hospice in Italy.
LITTLE STARS JORDAN
Hosted by Dr Mohammad Bushnaq, it has been our immense pleasure documenting children’s palliative care in Amman, Jordan. The filming will comprise part of feature documentary that will be broadcast on Al Jazeera Documentary Channel.
Moonshine’s film crew bore witness to stories relating to the innovative programs of Wellness House, which are transforming the lives of Jordanian children for the better.
OFFICIAL LAUNCH OF TAKE HEART
We’re delighted to announce that the official launch of Take Heart: The Quest to Rid the World of Rheumatic Heart Disease will take place at the Opening Ceremony of the World Cardiology Congress in Melbourne during early May before thousands of delegates from around the world.
To coincide with the launch the Official Teaser is now publicly available. Click through to watch it now. Please share it generously!
Find out more at www.TakeHeart.tv
MOONSHINE AT ‘ASIAN SIDE OF THE DOC’
Moonshine are back and energized after a great week in Chengdu, China attending Asian Side of the Doc a 4 day factual TV market. We’re very grateful to Screen Australia’s Enterprise Asia program for supporting us to be there.
We had a great week rubbing shoulders with our fellow Aussie filmmakers as well as great meetings with broadcasters, financiers and other stakeholders. We experienced some local culture and Sichuan ‘hot’ food and even saw the Panda’s.
We’re looking forward to building on the new relationships we have created through our week at the market! Have a look at our Coming Soon page to see our projects in development. Don’t forget to join us on LinkedIn and Facebook!
LITTLE STARS – MALAYSIA
What an amazing week we’ve just had in Malaysia filming for Little Stars! Not only did Hospis Malaysia play fabulous hosts to us, introducing us to some of their wonderful patients in Kuala Lumpur but we also had the enormous privilege of meeting Malaysian Royalty when we traveled to Johor Bahru to film at the Pediatric Palliative Care ward in Hospital Sultan Ismail.
A visit by Her Royal Highness Raja Zarith Sofiah Idris, the Royal Patron of the Malaysian Paediatric Palliative Care Programme was arranged for the day of our filming. Her Royal Highness plays an important, ongoing role in advocating for implementation and improved services for paediatic palliative care in Malaysia. It was a pleasure to meet her and witness the joy and excitement the children on the ward had at the opportunity to meet her.
INTRODUCING LEEANNE – LITTLE STARS – USA
Introducing LeeAnne, one of the stars of our Little Stars project. We had the great experience filming with LeeAnne in Boston last year. LeeAnne is 34 and doing an amazing job of living with Cystic Fibrosis, a life limiting illness she was diagnosed with at age 2. During our time with LeeAnne and her little dog Curly we gained some real insight into life with this illness and were blown away by her courage and tenacity.
LeeAnne lives with her fourteen year old son and husband and despite her condition she has an incredible outlook which she attributes to the support she gets from her palliative care team out of the Boston Children’s Hospital. We look forward to sharing more of LeeAnne’s story with you in the coming months.